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Rules for Research on Human Genetic Variation — Lessons from Iceland

- New England Journal of Medicine
Author/s: -Annas, George J.
Journal: New England Journal of Medicine
Year: 2000
Volume: 342
Issue: 24
Pages: 1830-1833
Abstract:

Research on genetic variation aims to understand how genes function and requires the comparison of DNA samples from groups of individuals to identify variations that might have importance for health or disease.1 This work is easier if the samples are linked to accurate medical records and genealogic information. Iceland has medical records for all its citizens going back to World War I and detailed genealogic information going back even further. Because Iceland’s small population (270,000) has long been isolated and homogeneous, it is thought by many to be an ideal place to search for disease-related genes. Journalists have cavalierly labeled Iceland’s “the most homogeneous population on earth”2 and have described the country as an “island so inbred that it is a happy genetic hunting ground.”3

URL: http://www.nejm.org/doi/full/10.1056/NEJM200006153422412

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  • This site compiles the latest research and academic journals as part of an NHMRC funded study, 'Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement'.

    This study is being conducted by the Centre for Values, Ethics and the Law in Medicine and the Centre for Health, Governance, Law and Ethics based at the University of Sydney, Australia. The Network for Bodies Organs and Tissues is also contributing.

    A substantial portion of the material provided in the database on this website was collected for a project on personalized medicine at the Centre for Law and Genetics at the University of Tasmania. That project is funded by Australian Research Council Discovery Grant DP11010069.
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