Biobanks and Longitudinal Studies: Where are the Children?

- GenEdit
Author/s: -Samuel, Julie -Ries, Nola M -Malkin, David -Knoppers, Bartha Maria
Journal: GenEdit
Year: 2008
Volume: 6
Issue: 3
Pages: 1
Start Page: 1

The inclusion of children in longitudinal research using biobanks raises specific ethical and legal issues. This article analyzes ethical frameworks concerning participation in biobanks and suggests that such frameworks, developed in the context of competent adults as research subjects, are not adapted for research involving children. It concludes that there is a need to elaborate guidelines specific to biobanks and longitudinal studies involving children and provides recommendations regarding parental authorization, the child’s assent and consent, and on the return of results in this context.