Reports

National Health and Medical Research
Biobanks Information Paper

2010
The National Health and Medical Research Council (NHMRC) has developed this Biobanks Information Paper to provide information relevant to the establishment, management and governance of biobanks in Australia.
http://www.nhmrc.gov.au/guidelines/publications/e110

Australian Law Reform Commission Report
Essentially Yours: The Protection of Human Genetic Information in Australia (ALRC Report 96)
2003
The two-volume, 1200 page report makes 144 recommendations about how Australia should deal with the ethical, legal and social implications of the New Genetics.
http://www.alrc.gov.au/publications/report-96

Nuffield Council on Bioethics - Report
Human bodies: donation for medicine and research (PDF, 3.4 MB)
2010

Nuffield Council on Bioethics - Report
Human Tissue – Legal and Ethical issues (PDF, 1.1 MB)
1995

Nuffield Council on Bioethics - Background Paper
Genomics, health records, database linkage and privacy
(PDF 230 KB)
2011

Cancer Institute NSW
A review of cancer related biobanks in New South Wales
December 2009

Translational Cancer Research Network, University of NSW
A report on the Workshop on Biobanking Informatics
May 2013

Guidelines

Department of Health, Western Australia
Guidelines for human biobanks, genetic research databases and associated data (PDF)
2010

Office for Health and Medical Research, New South Wales
Developing a framework for biobanks
http://www.health.nsw.gov.au/ohmr/pages/default.aspx

Organisation for Economic Co-operation and Development
Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs)
2009

International Society for Biological and Environmental Repositories (ISBER)
Best Practices (3rd ed)
https://isber.site-ym.com/?page=BPR
2012

National Cancer Institute (US)
Best Practices for Biospecimen Resources
http://biospecimens.cancer.gov/practices/
2007

Organisations

Australasian Biospecimen Network Association

International Society for Biological and Environmental Repositories